If you love someone with fibromyalgia, keep in mind that they suffer from severe pain that varies from day to day and hour to hour. So we want you to understand that sometimes things have to be canceled at the last minute and this bothers us as much as you do.
We want you to know that we have to learn to accept our body with its limitations, and it is not easy. There is no cure for fibromyalgia, but we try to relieve the symptoms every day. We ask not to suffer from this.
Many times we feel overwhelmed and can not cope with more stress than we have. If possible, do not add more stress to my body.
Although we see well, we do not feel well. We have learned to live with constant pain most days. When you see us happy it does not necessarily mean that we do not have pain, we are simply dealing with it. Some people think that we can not be so bad if we are good. Pain is not. This is an “invisible” chronic disease and it is not easy for us to have it.
Understand, please, because we can not work and we are not before us to be lazy. Our fatigue and pain is unpredictable and because of this we have to make adjustments in our lifestyle. Something that seems simple and easy to do is not for us and it can cause us a lot of fatigue and pain. Not necessarily something that we did yesterday we can do today, but it does not mean that we can not do it.
Sometimes we get depressed. Who would not be depressed with a strong and constant pain? It has been found that depression occurs with the same frequency in fibromyalgia as in any other chronic pain condition. It hurts us to be depressed but we get depressed by the pain and inability to do what we use. We also feel bad when there is no support and understanding from doctors, family and friends. Please understand, with your support and help you lessen my pain..
While we sleep all night we do not rest enough. People with fibromyalgia have poor sleep quality, which makes the pain worse the day they sleep poorly.
For us it is not easy to stay in one position (even seats) for a long time. This causes us a lot of pain and it takes time to recover. Why not let some activities we know that this factor would hurt us. Sometimes we go though we know the consequences that will bring.
We will not go crazy if we sometimes forget simple things, what we were saying, someone’s name or say the wrong word. These are cognitive problems that are part of fibromyalgia, especially on days when we have a lot of pain. It’s something strange to you and me. But we laugh together and they help us maintain our sense of humor.
Most people with fibromyalgia are the most familiar with this condition some doctors and others as we have been forced to educate ourselves to understand our body. Therefore, please, if you are going to suggest a “cure” for me no. Not because I do not appreciate your help or it will not improve, but because I keep myself informed and have tried many things.
We are very happy when we have a day with little or no pain when we sleep, when we do something that we have not achieved long ago, when we understand.
We really appreciate everything you have done and can do for me; Including your effort to inform and understand. Small things mean a lot to me and I need you to help me. Be gentle and patient. Remember that inside this body still pain and tired I am still. I am trying to learn to live day by day with my new limitations and keep hope in the future. Help me laugh and see the wonderful things that God gives us..