Often described as the “invisible disease,” a patient with fibromyalgia may look good, but in reality suffers from marked muscle and joint pain, as well as constant fatigue, chronic headaches, anxiety, and depression. If you live or read daily with a patient with fibromyalgia, know how to alleviate your suffering, providing you with a higher and better quality of life ..
- Get in touch. One of the best ways to support a patient with fibromyalgia (or any other disease) is to find out about it. Research all you can about fibromyalgia so you can see what symptoms affect and make the patient suffer – be truly aware of what you are or will deal with daily. In this way, it will be easier to understand, deal with and support the patient, as well as to do their medical follow-up.
- Daily tasks. The bodily pains and incapacitating fatigue that characterizes fibromyalgia are the main responsible for hinder the daily life of those who suffer from this disease. One of the ways to help is through physical support, that is, performing household chores that need to be done, in case of house cleaning; do grocery shopping; cleaning and watering the garden; make dinner; clean the kitchen; washing, ironing and ironing; washing and vacuuming the car; among many other tasks. The patient with fibromyalgia will certainly thank you.
- Learn to communicate. Fibromyalgia is known as the “invisible disease” because although the patient appears to be well, in reality he may be in great suffering. If you live with or care for a person with fibromyalgia on a daily basis, it is crucial that you communicate openly with them – only then will you know how you feel, whether you want to quit, whether you need rest, if you need any treatment for it. Learn to communicate with a patient with fibromyalgia, knowing what they should and should not say.
- Be flexible. Fibromyalgia is a disease characterized by “seizures”, that is, a person living with this disease can feel very well one day and the next day can not leave the house. Be prepared to deal with and deal with the unpredictability of the disease, as this may call into question daily routines, travel, weekend trips or other special plans.
- Incentive for physical exercise. Fibromyalgia sufferers may want to do everything but practice physical exercise, however, this is an activity that should encourage the patient to do . Several studies have shown that regular exercise in low-intensity exercise brings countless benefits to fibromyalgia sufferers: it decreases pain and stiffness, relieves stress and anxiety, improves sleep patterns and can guard against the occurrence of seizures constant. The best way to motivate a fibromyalgia patient to move is to keep them company: take walks or bike rides together; do meditation; subscribe to a yoga, pilates or water aerobics class.
6- Quality time alone. Being diagnosed with fibromyalgia will turn anyone’s life upside down, but that does not mean that the patient has to put his life on standby . Part of the treatment of this disease should be to ensure that the patient with fibromyalgia has daily quality time alone to be able to devote to such small things as taking a dip, reading, listening to music, painting or gardening – even to the person not feeling that the disease is taking over your life completely. Do what you can, so that the person can get this time, that is, free him of some task, make a babysitter for a few hours or a whole weekend, offer him a spa treatment . These are small things that can make a big difference in fibromyalgia: reducing stress levels, increasing energy levels and living a more balanced life.
7-Make sure your room is a haven. If there is anything that a patient with fibromyalgia can not abdicate is a good night’s sleep every night. Sleep well is key to dissipating the crippling fatigue that unfortunately characterizes fibromyalgia and ensuring that the person wakes up with energy to face a new day without crises. In this sense, if you take care of a patient with fibromyalgia, it is crucial that your room is a zen refuge: dark, cool, quiet and without distractions (television, radio, computer, exercise equipment …), the room should only be used for to sleep.
8- Support group. There is nothing like talking to someone who understands exactly what we are feeling and what we are going through – this also applies, of course, to fibromyalgia. Motivate the patient you live with or care for, participate in a fibromyalgia support group that can be face-to-face or virtual: important is that you have access to this community, where you will find emotional support, useful tips and a place to vent …